Lilianna Mint – Young Women with POTS
Can you share a little about the onset and how you came to get a diagnosis? I started noticing symptoms in my final year at school while studying for A-levels. … Read More
Can you share a little about the onset and how you came to get a diagnosis? I started noticing symptoms in my final year at school while studying for A-levels. … Read More
It’s Severe ME Awareness Week now, in early August, and sharing this article seems particularly relevant. People who are most severely affected may find it hardest of all to access … Read More
In July 2026 the UKs ‘i newspaper’ published an article about a still-to-be-peer-reviewed study of 75 people who claim to be ‘recovered’ from post-viral type conditions. Several organisations and patients … Read More
Lena is in her early forties and has experienced chronic ill health since she was 15. She shares her thoughts with us about the usefulness and sometimes also the difficulties … Read More
Setting up a ‘Grieving the Life Unlived’ meeting Christine Sweeney created a ‘Grieving the Life Unlived’ meetup for (and with) members of Cambridge ME Group (UK). She shares her inspiration … Read More
Kirsty lives in the UK and has had ME for 30 years or so. She writes about ‘hope’ – whether it helps, how it can be misused, and what ‘real’ … Read More
People with difficult to diagnose and ‘psychologised’ illnesses such as ME/CFS understandably struggle to keep their hope (of recovery, of quality research, of support) alive. It’s particularly hard to do … Read More
Brigitte, a widely read mainstream magazine with a large circulation in German-speaking countries, has just published a special edition about ME/CFS. It’s great! The researchers and journalists have interviewed doctors, … Read More
What motivated you to get involved in this work? This was a project born very much organically… I was on Twitter one night reading some emotionally moving Tweets by people … Read More
Tell us a little about your professional background… how did you become interested in this area of work as a Physiotherapist? I am chartered Physiotherapist, qualified in 2005, and have … Read More
Can you share a little background about how you met and how M.E. started to impact your lives? Michelle When Ian and I got together, we travelled a lot, including … Read More
An anonymous person with M.E. explains her journey from sceptic to ‘really getting it’. She shares how she found community online, and how she approached therapy. She takes us through … Read More
Thanks very much for writing in to the British Medical Journal (BMJ) when they published an article arguing that beliefs about MECFS substantially shape the course of the illness and … Read More
Round up of articles spotted online in May 2025 that focus on the experiences of people with ‘psychologised’ or hard to diagnose health conditions. Keith Geraghty on O’Sullivan Writing in … Read More
In this post we hear from two people, Taylor* and J.E. Barnard, who have searched for support from therapists as they faced chronic ill health and the consequent impact on … Read More
What prompted your interest in counselling or therapy with people who have long-term health conditions? Before I became a counsellor I worked for Age UK where I regularly came into … Read More
Round up of articles spotted online in March/April 2025 that focus on the experiences of people with ‘psychologised’ or hard to diagnose health conditions. For Some Women With Serious Physical … Read More
This post looks at the effects of ‘psychologisation’ and stigma – in particular as it relates to M.E. (or ME/CFS or Chronic Fatigue Syndrome). The effects are far-reaching and have … Read More