Lilianna Mint – Young Women with POTS
Can you share a little about the onset and how you came to get a diagnosis? I started noticing symptoms in my final year at school while studying for A-levels. … Read More
Supporting Clients Through Medical Gaslighting
Supporting Clients Through Medical Gaslighting Since the post-pandemic explosion in post-viral and related diseases, the burden of this crisis has expanded far beyond patients and their immediate family members, many … Read More
Insights into text-based therapy
It’s Severe ME Awareness Week now, in early August, and sharing this article seems particularly relevant. People who are most severely affected may find it hardest of all to access … Read More
Lena – on how hope changes
Lena is in her early forties and has experienced chronic ill health since she was 15. She shares her thoughts with us about the usefulness and sometimes also the difficulties … Read More
Christine Sweeney – Grieving The Life Unlived
Setting up a ‘Grieving the Life Unlived’ meeting Christine Sweeney created a ‘Grieving the Life Unlived’ meetup for (and with) members of Cambridge ME Group (UK). She shares her inspiration … Read More
Hope v Acceptance in Chronic Illness – Kirsty
Kirsty lives in the UK and has had ME for 30 years or so. She writes about ‘hope’ – whether it helps, how it can be misused, and what ‘real’ … Read More
Keeping Hope Alive – Dan Wyke
People with difficult to diagnose and ‘psychologised’ illnesses such as ME/CFS understandably struggle to keep their hope (of recovery, of quality research, of support) alive. It’s particularly hard to do … Read More
Bita Nezamdoust: marginalization and neglect in Severe ME
What motivated you to get involved in this work? This was a project born very much organically… I was on Twitter one night reading some emotionally moving Tweets by people … Read More
Creativity and Chronic Illness
Art, and creativity in general, is something that brings meaning to the lives of many people. It can be hard to take part in or get access to when you’re … Read More
Seasonal Gift Suggestions
Seasonal Gifts from chronically ill creatives Not sure where to buy online this holiday season? We have ideas and suggestions that support chronically ill creatives, and often fundraise for medical … Read More
