Supporting Clients Through Medical Gaslighting Since the post-pandemic explosion in post-viral and related diseases, the burden of this crisis has expanded far beyond patients and their immediate family members, many … Read More
In July 2026 the UKs ‘i newspaper’ published an article about a still-to-be-peer-reviewed study of 75 people who claim to be ‘recovered’ from post-viral type conditions. Several organisations and patients … Read More
Lena is in her early forties and has experienced chronic ill health since she was 15. She shares her thoughts with us about the usefulness and sometimes also the difficulties … Read More
Setting up a ‘Grieving the Life Unlived’ meeting Christine Sweeney created a ‘Grieving the Life Unlived’ meetup for (and with) members of Cambridge ME Group (UK). She shares her inspiration … Read More
Kirsty lives in the UK and has had ME for 30 years or so. She writes about ‘hope’ – whether it helps, how it can be misused, and what ‘real’ … Read More
A recent request under the UK’s Freedom of Information Act has exposed an extremely low take up by doctors and other health care workers of free NHS training on ME/CFS. … Read More
People with difficult to diagnose and ‘psychologised’ illnesses such as ME/CFS understandably struggle to keep their hope (of recovery, of quality research, of support) alive. It’s particularly hard to do … Read More
Emma Hampson is a former therapist and a person with Severe M.E. who has had to retire due to ill health. She’s written a letter to the Editor of Therapy … Read More
Brigitte, a widely read mainstream magazine with a large circulation in German-speaking countries, has just published a special edition about ME/CFS. It’s great! The researchers and journalists have interviewed doctors, … Read More
What motivated you to get involved in this work? This was a project born very much organically… I was on Twitter one night reading some emotionally moving Tweets by people … Read More
Tell us a little about your professional background… how did you become interested in this area of work as a Physiotherapist? I am chartered Physiotherapist, qualified in 2005, and have … Read More
Art, and creativity in general, is something that brings meaning to the lives of many people. It can be hard to take part in or get access to when you’re … Read More
The M.E. Association and Action for M.E. have published updates on work by a group of psychologists who are creating new guidelines on M.E. for the British Psychological Society. The … Read More
The German Government recently announced a ‘Decade against Post-Infectious Disease’ and committed half a billion Euros of research funding. A huge boost for research into ME/CFS and Long Covid – … Read More
Articles and useful links from around the web during October 2025. From a critical look at Gabor Mate’s work through to some morale-boosting celebrations via pacing tips and much more. … Read More
Articles and useful links from around the web during August and September 2025. Covering Gulf War Illness, Functional Neurological Disorder, Lyme Disease and more… Gulf War Illness – solid science … Read More
A recent article in the magazine for members of the British Association of Counselling & Psychotherapy (BACP) has highlighted again the need for research, factual investigation and informed debate about … Read More
Chronically ill people often rely on carers for support with daily life – from a prepared meal now and again, through to full-time support with washing, appointments and advocacy. Those … Read More
Can you share a little background about how you met and how M.E. started to impact your lives? Michelle When Ian and I got together, we travelled a lot, including … Read More
An anonymous person with M.E. explains her journey from sceptic to ‘really getting it’. She shares how she found community online, and how she approached therapy. She takes us through … Read More
Thanks very much for writing in to the British Medical Journal (BMJ) when they published an article arguing that beliefs about MECFS substantially shape the course of the illness and … Read More
Round up of articles spotted online in May 2025 that focus on the experiences of people with ‘psychologised’ or hard to diagnose health conditions. Keith Geraghty on O’Sullivan Writing in … Read More
The BMJ (British Medical Journal) commissioned an article by a small group of authors who rehashed the ‘dysregulation’ argument and many other classic talking points of what has become known … Read More
In this post we hear from two people, Taylor* and J.E. Barnard, who have searched for support from therapists as they faced chronic ill health and the consequent impact on … Read More
What prompted your interest in counselling or therapy with people who have long-term health conditions? Before I became a counsellor I worked for Age UK where I regularly came into … Read More
This post looks at the effects of ‘psychologisation’ and stigma – in particular as it relates to M.E. (or ME/CFS or Chronic Fatigue Syndrome). The effects are far-reaching and have … Read More
Many people with long term health conditions require and deserve support with specific problems such as grieving for lost (or drastically affected) life plans and adjusting to being ill. As … Read More
This video series, part of a project led by Natalie Boulton, working with cameraman and editor Josh Biggs, is one of the best educational tools for understanding the illness of … Read More
For decades patients with Myalgic encephalomyelitis (also known as M.E. or Chronic Fatigue Syndrome, often abbreviated to M.E. or ME/CFS) have experienced disbelief and stigma when accessing medical support as … Read More
