Lilianna Mint – Young Women with POTS
Can you share a little about the onset and how you came to get a diagnosis? I started noticing symptoms in my final year at school while studying for A-levels. … Read More
“Brain Retraining” Merry-Go-Round
In July 2026 the UKs ‘i newspaper’ published an article about a still-to-be-peer-reviewed study of 75 people who claim to be ‘recovered’ from post-viral type conditions. Several organisations and patients … Read More
Bita Nezamdoust: marginalization and neglect in Severe ME
What motivated you to get involved in this work? This was a project born very much organically… I was on Twitter one night reading some emotionally moving Tweets by people … Read More
Personal Wish List for Psychological Research
The German Government recently announced a ‘Decade against Post-Infectious Disease’ and committed half a billion Euros of research funding. A huge boost for research into ME/CFS and Long Covid – … Read More
#5 – Elsewhere on the web October 2025
Articles and useful links from around the web during October 2025. From a critical look at Gabor Mate’s work through to some morale-boosting celebrations via pacing tips and much more. … Read More
#4 – Elsewhere on the web Aug/Sept 2025
Articles and useful links from around the web during August and September 2025. Covering Gulf War Illness, Functional Neurological Disorder, Lyme Disease and more… Gulf War Illness – solid science … Read More
Misdiagnosis in patients with Hypermobility/EDS
Recent research by Chanbin Lee and Pradeep Chopra from the USA shows a shocking misdiagnosis rate for people who have Ehler’s-Danlos Syndrome and related Hypermobility Spectrum Disorders (known as hEDS). … Read More
